Green Cameroon on World Rare Disease Day 2015
Rare disease day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. It was established in 2008 because, according to the European Organization for Rare diseases (EURORDIS), the treatment for many Rare diseases is insufficient, as are the social networks to support individuals with rare diseases and their families, furthermore while there were already numerous days dedicated to sufferers of individual diseases (such as AIDS, cancer, etc.), there had previously not been a day for representing sufferers of rare diseases.
In 2009 Rare Disease Day went global as NORD (National Organization for Rare disorders) mobilized 200 rare disease patient advocacy organizations in the United States while organizations in china, Australia, Taiwan, and Latin America also lead efforts in their respective countries to coordinate activities and promote the day.
This year, leading rare disease patient advocacy organizations including Green Cameroon and the Global Genes Project have joined forces to promote Rare Disease Day 2015.
Green Cameroon would be observing Rare Disease Day by taking part in walks and press conferences to raise public awareness of rare diseases, organizing fundraising, and writing en mass to government representatives, health related non-profit organizations across Cameroon to hold events, gathering, and campaigns.
“The ultimate measure of a man is not where he stands in the moment of comfort and convenience, but where he stands in times of challenges and controversy”. We must accept finite disappointment, but we must never lose infinite hope. Join our vision and become a blessing to someone.